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Patient Issues and Opportunities for Fair Access to Gene-based Therapies in Rare Disease
Specialist healthcare communications: the challenges for cell and gene therapies and rare diseases
Advancing Data Collaboration in Rare Disease and Epilepsy Research
What to Expect as a Participant in a Gene Therapy Clinical Trial
New Opportunities in Rare Disease | Yale Innovation Summit
CARE Panel: The Ethics of Developing Therapeutics for Rare Diseases
Virtual Conversation: Gene Therapy and the Promise for Rare Disease in California
Ask-An-Expert Series; Rare & Ready: Clearing Hurdles to Access Rare Disease Therapies
2023 Rare Disease Week – Achieving Equitable Access to Utilization of Genetic Testing
Josie Godfrey. The challenge of rare diseases. 08.04.2021
Patient Centric Approaches for Rare and Ultra-Rare Diseases
WCN Fluencer: Wes Michael Rare Patient Voice
